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This site dedicated to John Dylan Cully
Ullrich congenital muscular dystrophy is also known as Scleroatonic muscular dystrophy. It is closely related to Bethlem myopathy which is located on the same gene.

This site is an archive of research and a place to contact other Ullrich patients.

Please feel free to contact me at jamiecully@hotmail.com.

 

 

 

 

Standard Disclaimer: This site is designed for educational purposes only. The information provided through this site should not be used for diagnosing or treating a medical issue, health problem or a disease. It is not a substitute for professional care. If you have or suspect you may have UCMD, you should consult your health care provider.